Last night, mila developed a bit of a distended tummy and became very irritable and easily cried. After a few minutes, I called for some more pain meds. Even though it wasn't ordered, the nurse got her an rx of ibuprofen and that helped a bit.
We eventually had to lower her feeds to 20ml / hour and leave her iv running. I assume we'll try upping her rate and lowering her IV again today.
After lowering her feed , we burped her through the tube.. Very interesting. She was then able to sleep for most of the night!! Even I slept a bit!!