Mila continues to struggle with eating. She's developed chronic diarrhea. She refuses to sleep. We are all extremely disheartened. She's keeping hydrated and may very well be gaining. But right now, all I can say is that no one is sleeping, no one is happy.
I oscillate between wanting to believe that she is just a normal, skinny little girl. But normal little girls at this age sleep at night, and nap during the day. Mila does neither. Normal little girls finger feed themselves. Mila has stopped doing this and most often just throws the food to the side. If she does get a bit in her mouth, she scrapes it out like its burning her. Normal little girls will eat purees. Especially fruity sweet purees like apple and pear puree. Mila wouldn't touch it with a 10 foot pole.
Normal little girls don't gag when their hands touch something cold and slimy. Normal little girls don't choke on unthickened formula. Normal little girls have normal growth curves.
Here is a small series of pictures as I try to feed Mila a bite of bread. Look at how distressed she gets. THe last photo, she is pushing my hands away and shielding her face from me..I am trying to capture a small video soon to show this as well.